Episode 1: Living with FOP: Storme Bush's Journey with a Rare Disease

Welcome to Take on Health by PubHealth TV. In this episode, host Arion Lillard-Green delves into the complexities surrounding rare diseases, focusing on Fibrodysplasia Ossificans Progressiva (FOP). FOP is one of the world’s rarest diseases, turning muscle and soft tissue into bone. Learn from Storm Bush as he shares his remarkable journey of living with FOP, including his challenges with diagnosis, managing symptoms, and navigating healthcare. This conversation highlights the real experiences of those living with rare conditions and the importance of support and awareness. Join us to better understand what life with a rare disease truly entails.